The Blurb On The Back:
From DNA sequences stored on computer databases to archived forensic samples and biomedical records, bioinformation comes in many forms. Its unique provenance – the fact that it is ‘mined’ from the very fabric of the human body – makes it a mercurial resource; one that no one seemingly owns, but in which many have deeply vested interests.
In this groundbreaking book, authors Bronwyn Parry and Beth Greenhough explore the complex economic, social and political questions arising from the creation and use of bioinformation. Drawing on a range of highly topical cases – including the commercialisation of human sequence data, the forensic use of retained bioinformation, biobanking and genealogical research – they show how dramatically demand for this resource has grown, driving a burgeoning but often highly controversial global economy in bioinformation. But, they argue, change is afoot as new models emerge that challenge the ethos of privatisation by creating instead a dynamic open source ‘bioinformation commons’ available for all future generations.
The Review (Cut For Spoilers):